Join the LYNK Network - Collaborate. Learn. Transform care.
The LYNK Programme is sponsored and funded by BioMarin. For healthcare professionals only.
LYNK stands for Lysosomal & NCL Insights and Knowledge-sharing Network. This global initiative connects specialists, treatment centres, and referral networks together to optimise long term care for NCLs.
Our mission is to share best practices, align care standards, and optimise patient pathways while fostering thought leadership and advancing rare disease education and care.
Through a series of interactive forums, educational resources, and expert-led webinars, LYNK provides a space to:
- Collaborate with peers and treatment centres to harmonise standards of care
- Share clinical experiences, challenges and evolving best practice
- Learn from real-world multidisciplinary perspectives
- Advance long-term outcomes for children living with NCLs
Together, we can build stronger connections, improve patient pathways and support optimal outcomes for patients with NCL worldwide.
Be part of the conversation. Be part of the change.
COM-ET-0781
Date of Preparation: 12/25
Please note that BioMarin medicines may be discussed during LYNK Network events. The LYNK Network and all associated events are for healthcare professionals only.
Register now to join the LYNK network and access upcoming events and resources.
When you submit your registration, your personal data (such as your name, email address, and any other information you provide) will be collected and processed initially by WebHealth Media in Canada for the purpose of registering you for the LYNK programme. Please note that this means your personal data will be transferred outside the European Economic Area (EEA) to a country that may not provide the same level of data protection as within the EEA. The transfer of your personal data is made in accordance with Article 49(1)(b) of the EU General Data Protection Regulation (GDPR), as it is necessary for the performance of a contract between you and the LYNK host to provide you with access to the event or programme. BioMarin does not receive or retain your registration data unless you explicitly consent to further communication from us (for example, to receive related materials or future updates). For details about how your information will be processed and protected, please review the privacy policy, which will be accessible during registration. If you have any questions about how BioMarin handles personal data in connection with this event, please see Data Privacy Center | BioMarin